This summer is a summer of hope. A new federal government will soon take over to implement the mandate of the people. Yet far from the grind of elections, the voice of more than 90 million Indian citizens is bound to drown as the chatter of hard politicking articulates welfare policies in the next 5 years.
Nobody knows this better than the rare disease community which faces an enormous challenge. Rare diseases are usually genetic, and take only some people in a population ill. Even as these affect a relatively small group, as per a widely accepted official estimate, 70-90 million Indians have one of the 450 rare diseases reported in the country. Being rare is a life-altering event, the nuances of which I explore in India’s first podcast on people with rare medical conditions, 1 in 20,000, produced by Suno India.
Source : https://feminisminindia.com/2019/05/23/ability-people-with-disabilities/